Monday, September 24, 2012

Six months

Yesterday was six months since my MS diagnosis. Had this come days ago I think I'd be far more optimistic in what I would say. But that was before Friday's appointment. We've discovered some issues that are a little TMI in nature. Personally I don't really have issue putting it all out there, but I have a feeling there are things most of you don't want to read about. Nonetheless, there are issues we are addressing, and some self administered treatment that is less than pleasant. And all of this has thrown me for a loop. This is the first low I've really hit since my diagnosis. I freely admit I've been in a fair amount of denial, but this has made it all too real on a daily basis. I expect to shake this off and keep going but it might take a little while.
Other than Friday's hiccup, I've been rolling along with things pretty well. My monthly infusions are going well. The one coming up this week will be my last on the Benadryl. I need to work harder on making my PT/OT exercises part of my daily routine, and just working in exercise all together. I did a session with the fitness trainer and I now know what I need to do, it is just finding the time. The gym at the MS center has horrible hours despite being in a perfect location. I talked to one of the Doctors about this and he's going to do some polling about need and hours. I've acquired a cane this last week. It's not something I need all the time, but there are times when I need just that little extra help with balance...especially in the evening. When I am home, I'm fine to bounce off the walls, but out in public lack of balance can lead to issues like this. My husband was surprised that I got a cane. I don't see it as a sign of weakness, but merely as a tool. My only requirement is that it looks kick-ass.
I can tell, sometimes, when I am due for my infusion. Words are harder to come by. Nouns like to run and hide from me, much like Little Miss does. I'd love to get my hands on my MRI and see where my brain lesions are and compare that to a map of brain function.

I'd write more but I am exhausted at the moment.

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